Saturday, May 26, 2012

Waking the sleeping beast

We poked the beast that is the tumor growing in my neck.  It is not happy.  Since I got my biopsy my neck has been sore and hurting.  Today while talking to PJ I told him we woke the sleeping beast and it is angry.  But here is the thing tumor beast, I don't like you.  I'm not sure where you think you got this invitation to take up residence in my neck but you are not welcome and you are coming out!!!!
I talked with my endocrinologist doctor yesterday.  I am not able to get in until June 5th.  That's with him coming in special for me in the morning to see me.  At first I was unhappy with this date but after talking with my doctor, feel ok with waiting that long...I guess.  I also have a bit more info.
First, the type of cancer that I have is called papillary.  My understanding is that this the the best of the 4 types you can have.  I have taken an oath to stay off Google during this process.  For those who don't know me (which I am amazed at all the messages from people I have never met, more on that in a second), I am what some may call a bit of a ummm...what's the right word....not quite a hypochondriac, but yeah maybe a bit of a hypochondriac.  My running joke with my dad the past few days has been, "See I finally showed you!!!!" (referring to all the times I have told him I have cancer, any certain disease, and even one time anthrax poisoning, that's right anthrax).  So in an effort to save a bit of my sanity I refuse to google anything related to thyroid cancer.  BUT, I have received very encouraging information and statistics from various friends/family/strangers that assure me that this is the cancer to get if you are going to get a cancer.  And the recovery rate is quite high.  So I will cling to those words of encouragement and leave Google searches to the more sane :)
Next, the most likely path of treatment will be: first, we must make sure the cancer hasn't spread.  If it hasn't, we will take out my poor little thyroid completely.  Then, the doctor will determine if I need to take some radioactive iodine pills to precautionarly get rid of any lingering cells.  Last, I will need to take thyroid medication, which I hear can be a quite a process to get right for your body.
OK, my hubs is giving me the, get off the computer we have to go look but first I need to take a moment to speak to the response I have received in the past 24 hours regarding this blog.  Wow.  I have had text message, voicemails, emails, and FB messages from so many of you and I cannot thank you enough.  I mean it.  Writing is therapeutic to me and I have always loved it.  I forgot how much until I started typing the first sentence of my last post.  And I have to say, the idea that people out there are reading about me, my experience, and my little family, well it's not enough to say that it means a lot to me.  It is a comfort.  It is reassuring.  I soak up every word of support and encouragement from your responses.  Keep em coming. 
I am about to head out to dinner now with a large part of my Lockhart family.  We will no doubt be wrangling, singing, distracting, and trying to prevent meltdowns from my 2 weary travelers (aka: my baby loves) for the next 3 hours, wish me luck.  I will end today's post with this.  Thank you.  Thank you for reading, thank you for caring, thank you for reaching out to me.  I cannot get enough of it :)
The beast once slept.  We woke it up.  Now it's time to slay this thing and reclaim by body as my own.
 And next time, I promise to enlighten you on my new found disgust for Thyroid cells (just for you Auntie Meg).

4 comments:

  1. You are AMAZING Rachel! And I know we have had these google conversations before... I too am horrible! And when I saw your post the first thing I did was google! I deserve a fat spanking. But better me then you :) I was praying it was the 'papillary' (not sure about that spelling) kind. I know you can kick this!!!
    Xoxo!
    Ash

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  2. Hang in there, Rachel. If you do need to take the radioactive pills, you might want to consider finding a place to stay away from home. Your radioactive body will need to be a certain distance away from people (a few feet) and your little ones will not understand. My buddy, Anne, stayed with me for a few days. I lived in a big house across the street from her. It was before I moved to McGillivray. Her oldest boy was just a toddler then and she knew he would not stay away from her if she was at home.

    Claudia

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    1. Hey Claudia! We miss you. Glad you're still here even when you're so far away.
      Heidi

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  3. You really are a great writer. When you are done slaying this beast, you should take up writing as a professional hobby. Is that a real thing? If not, o'well. You make up words why can't I make stuff up too?

    Staying off Google is a GREAT idea-and knowing you, necessary!!! Regardless, what is Google going to tell you that you don't already know? JESUS is the Great Healer.

    Love You!

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